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Some of you may be aware of little Eddie, our Romanian Rescue dog.

 

He has several injuries resulting from a life of abuse and torture, the most obvious being the hole in his nose.  I am adding a link to his crowdfunding page at the end of this post on which you read more about his past.

The vets have now had the results of the tissue cultures and swabs: he has a bacterial infection (rather than a fungal one) which is responsible for the destruction of the interior of his nose.  In one way that is good because fungi are harder to eradicate than most bacteria. But the bad news is that not only is the infection in his nose but is also in the bones of his skull.  Therefore, if left untreated he will die.

The bacteria entered his system through the large hole in his nose and have been steadily chomping away internally.  The vet has two treatment plans ready to go, Plans A and B.  We all prefer Plan A which is the simplest and involves eight weeks of targeted antibiotics followed by, if the infection is defeated, plastic surgery to his face to close the hole and help his poor old nose.  Plan B will involve opening up his nose further, packing the whole space with gauze and inserting a tube down which antibiotic will be dripped twice a day, as well as continuing with the oral antibiotics.  When the bacteria are dead, his face will have to be reconstructed.  Sounds horrid, but the vet, a famous vet in the UK, is sure that it is possible to achieve a good result eventually.

Of course, the pet insurance will not pay anything because they state, quite correctly, that it is a pre-existing condition.

It was this TV vet who suggested the crowdfunding as he thinks Eddie is such a deserving case!  Actually, I think that perhaps the vet himself could have offered to waive or reduce the fees, but perhaps he will contribute to the crowdfunding;)

So, we begin medicating tomorrow and will be keeping our fingers crossed.

https://www.leetchi.com/c/money-pot-eddie-22587947

If anyone feels moved to read more about Eddie follow the above link: if you feel like contributing, however little, it would be a real act of kindness, but sharing the link would be really, really helpful too, so that as many people as possible have the chance to read about little Eddie’s amazing story.  Thank you:)

And, as for me, well I completed a 19 day water-only fast in June/July and now am intermittent fasting, eating only in a four hour window during the day.  All to see whether I can reduce or remove the cancer.  But during those four hours I eat for England, which is fun:D

 

Image result for greed for food(From google images.)

Husband has been taken on a weekend trip by our son so I am having an indolent and selfish three days doing exactly what I please, as I please.

Oh yes, and a man crashed his car into the driver’s side of my car yesterday, so something else to sort.  Really, I wonder exactly how many balls I can juggle at once!!!!!

 

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. . . and still on the Rollercoaster, but I think I am now travelling up one curve at the moment: fingers crossed that we continue slowly to the top and plateau there for a good long time.

Image result for rollercoaster cartoon drawing

 

I have worked hard and made some decisions and am feeling rather better.  But am under no illusions.  At least, I don’t think so.

After further research, and following messages and comments so kindly sent to me, I have made appointments with several people.

  1.   PTSD – I found a lady on the internet whose website I really liked.  We then spoke and seemed to get on well.  After I had made an appointment to see her two other friends mentioned that they either knew her personally or of her work and they spoke extremely highly of her.  She practices EFT (Emotional Freedom Technique) by tapping on acupuncture meridian points as one recalls trauma, to change learned emotional/body synapse response.  Image result for PTSD Emotional Freedom TechniqueI am told that this has really good results for many people and has become accepted treatment for many ex-service personnel.  If any of you have experience of this I would be grateful to hear of it.  My husband is sceptical and thinks it is some form of hypnosis:)

2.  I am seeing a tutor of Pilates who is going to help me develop the muscles around the area which will be removed so that I  will have some muscles left to help me move my leg.  Toes crossed this time, for success.

Image result for pilates cartoon images

3.  A local cancer charity provides taster sessions of various therapies free of charge so that one can find out what helps: so I have made an appointment with  a Medical Herbalist/Dietary Consultant who also happens to have a really good reputation and, it turns  out, is a friend/ex-colleague of another friend  of mine.  I am hoping to get some support for my Immune system to help combat the cancer cells and also to help me with my chemical allergies.

Image result for herbalist

4.   In a similar vein I am having a conversation with a Homeopathic doctor just to explore the situation and get a feel for which way I  want to tackle my  current problems.

Image result for homeopathy

5.   Finally, I have just had a lengthy conversation with an oncology nurse in the USA who has devoted her later career to exploring all the ongoing research and experimental trials in process.  After 20 years working with seriously and terminally ill cancer patients she felt that there were too many alternatives and adjuncts which were not being included in mainstream treatment.  She appeared to  understand my current medical situation at once, as well as understanding how I may have come to this point; certainly her  interpretation of my metabolism and the long term effects of past surgery fitted exactly with how I feel about things.   She suggested some tests which are not offered in the NHS and if I can afford them I think they may be very worth while. I  just may have to join Eddie with the crowd-funding!!!

Image result for mywellnesstutor

Since I have no large intestine and only a little part of my small intestine left, she and I feel that 50 years of impaired absorption leading to imbalances and/or deficiencies may have had  an effect on my immune system.  I also know that I have a SNP on one chromosome which prevents me from metabolising toxins.  Clearly not helpful.   She felt that this fact was a fundamental part of my current problems.  In other words, ‘my bucket is now full’!

So, one test she suggests would check to see exactly what the nutritional condition inside my cells is, rather than what is merely circulating in the blood as there can be many a slip ‘twixt blood, receptors and cell interiors!!

The second test would check a blood sample for any cancer cells which may be circulating: these are then cultured and 150 different  chemo, radiation, immunological and biological factors are tested against the cancer cells to see whether any of them appear to kill  the malignancy.

I am hoping that after speaking to all these people and taking the tests I will feel better informed to make a treatment plan which I can use, apart from or as well as, the surgery.

My feeling is to support and repair my immunity and nutritional status so that the tumour ceases to grow:  then I hope that the surgeon will agree to monitor me for several months more while I trial some of these approaches and see if by any chance the tumour will slowly decrease.   I know he will say there is no chance other than surgery which will be a difficult conversation.

However, since the accepted wisdom is that they have no idea what causes this type of cancer, and since none of the treatments available have any effect at all on it apart from repeated surgeries, I feel that my approach is as good/bad as theirs.

I have to make some decisions about what I am prepared to live with versus mobility/ability to do all the things which I am desperate to achieve.  This is going to be tricky as I do not want to be irresponsible and risk losing many years of good life, but neither do I want to be crippled and lose years to recovering from major surgery and living with an even more debilitated immune system.  I fear that all the drugs which would be used during and after surgery, may finally finish it off.

In the 1980s, when I had six surgeries and general anaesthetics and rounds of antibiotics in eight months, I was left unable to leave my bed for nearly three years.  The medical profession gave up on me and my then consultant just told me that I had the body of an 80 year old woman.  I was in my early thirties and was left to heal myself.  It took me a great deal of research and work to get out of that bed, and I was a much younger woman then.  You can see why I am not immediately trustful of medics.  No criticism intended, but if you do not happen to have an orthodox metabolism or fit the general mould it is hard to find someone who can relate.  Clearly I am some kind of evolutionary throwback.

It is true that action and decision-making makes one feel more in control and therefore stronger.

Image result for decision making

Thank you again to everyone who left me comments and who messaged me: the support feels tangible and very real.  I am still worried, scared and feeling inadequate to the task facing me but one step at a time.

PS All the images in this post are from Google Images: none are my own.

 

 

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Kindred spirit!!

I have to admit that the following is lifted wholesale from http://www.pressassociation.com/ but I could not resist it!!

 

 

Chocoholic Giant Fish Gorged On Kit Kats

Fish scales back chocolate habit

Press AssociationPress Association – Mon, Aug 1, 2011

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  • Gary the giant gourami that London Aquarium staff have weaned off chocolate (Sea Life London Aquarium/PA)Enlarge PhotoGary the giant gourami that London Aquarium staff have weaned off chocolate (Sea …

Aquarium staff have weaned a chocoholic giant gourami onto a healthier menu of grapes and bananas after inheriting the creature which was raised entirely on Kit Kats.

Staff at the Sea Life London Aquarium were baffled by the 8.8lb (4kg) fish’s refusal to feed, until they learned the gourami, named Gary, 15.7in (40cm) long, had been brought up on chocolate.

So the team stuffed crushed Kit Kat pieces inside grapes to get Gary to “take a break” from his daily fix.

“I have never heard of a fish being fed chocolate, let alone being brought up entirely on the stuff,” said Gary’s handler, Rebecca Carter. “Gouramis usually eat a diet of fruit but Gary doesn’t appear to have suffered any ill effects from his chocolate addiction. However, we would not recommend feeding fish confectionery of any kind.”

Gary is not the only unusual creature to come to the attraction from private owners. Nearby lives Ed, a catfish with decidedly cat-like tendencies.

Ed will only accept his food by hand and likes to be stroked on the head at the same time. He has also learned to head-butt a lethal puffer fish who vies for his food, staff said.

Gary and Ed’s interest in food highlights a more serious issue, aquarists said. They have nicknamed one display the “tank busters” tank, because it houses a number of large fish that simply grew too big for their owners to manage.

“Many people don’t do the right research when they buy fish and end up unable to care for them,” said Ms Carter. “Catfish are a good example and we have a number here that outgrew their homes.

“Terrapins are another – they can live for 40 years and are actually quite costly to care for. We’d urge people to think before they buy.

“We’re delighted we could find a home for Gary but the fact is we simply do not have the space to accommodate the vast number of re-homing requests we receive.”

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Well, the new immune support diet is certainly going down well with the dog!

He has the same for breakfast and supper – lightly stewed meat (in this instance low fat lamb mince), with cooked carrots, potatoes and cabbage: added later just before serving is aloe vera juice, cod liver oil and mixed vegetable oils (safflower, sunflower, hemp).

Lunch is lightly steamed fish (we alternate oily and white fish, fresh and tinned) with brown rice and cabbage, vitamin c and multi vit/min.

Morning and evening he also has various homeopathic remedies, which alternate each day.

I don’t see much improvement in his legs, but boy, is he feeling good.  Alert, happy, and really looking forward to each meal.  I have to say he is eating better than we are at the moment and I am spending a great deal of time in the kitchen cooking for him!

He has always been a picky eater and reluctant to begin eating so it is lovely to see him actively looking forward to his meals now.  We have had trouble keeping weight on him because of his eating habits and his huge energy levels so I don’t foresee him having the trouble that befalls the little dog in this delightful clip but we will keep an eye on his weight:

So, even if his future is not good, at least he is feeling better and enjoying life now, which is important to us all.  I think he is pretty much over his dreadful steroid reaction thank goodness.

NB  I have done a calculation of how much his diet is costing and it is not much different from his previous diet of prepared dried and tinned food.

Tomorrow we are taking the eldest grandchildren to London for the day: kick off 06.40 am, return 10.30 p.m. with the Science Museum with the IMAX cinema, simulators and history of medicine gallery, and the Victoria and Albert Museum with its gallery on William Morris top of the list.  Then, time permitting, there is the Old Bailey,  the preserved body of Jeremy Bentham in the hall of University College, London, the William Morris Museum at Walthamstowe, and perhaps one of the wonderful museums of medical history.  At the moment the girls want to become a Lawyer and a Psychiatrist, respectively.  Of course, there is the river to boat down, the Tower of London with Traitor’s Gate and Madame Tussauds.  Not to mention the Sherlock Holmes Museum.  Too much to do, too little time.  I fancy tea at the Ritz but I think it might be outside our budget!!

They have not had much in the way of days out these holidays so we thought they might like this before school restarts.  If we have  fun, I’ll tell you about it!

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